4 Lesser Known Warning Signs of Autism
I may have never realized my older son had autism if his little brother’s warning signs weren’t so obvious. During my intensive research for my younger son, I began seeing some of his older brother’s behaviors listed as symptoms of autism – things that I didn’t realize weren’t “normal.” Many people are under the assumption that autism is a fairly definitive disability, characterized by lack of speech, cognitive delays, and social aversion. Quite contrary to popular belief, it covers a broad spectrum, and many characteristic behaviors are easily overlooked. Make sure you don’t miss some less common warning signs of autism.
The Warning Signs of Autism that I had Missed
When my second son was born, it was immediately obvious to me that something was different about him. Everyone told me not to worry – I was being paranoid – everything was okay – he’d grow out of it – all babies are different – he was just a newborn, etc. Well, he didn’t grow out of it, and the concerns continued.
His autism warning signs seemed obvious to me. He didn’t want to be held or cuddled as a newborn – at all. It was so bad that I had to wrap him loosely in a blanket and set him in a bouncy seat, with his bottle propped on the blanket, in order to get him to feed. He didn’t use both sides of his body equally – he could only roll to one side. He didn’t sit up on time. He would ball up his fists and beat his stomach during diaper changes. He didn’t make eye contact until he was almost 7 months old. He refused to even TRY solids – meaning the stage 1 purees – until he was 11 months old. And the list goes on.
His pediatrician blew off my concerns, and said they would do a short autism screening at 18 months. That did it for me. I wasn’t about to just sit idle, worrying about what to do next, until he was 18 months old. So I started researching on my own.
If you think you may need to do some research, but don’t know where to start, check out this comprehensive autism guide I put together.
The more I researched, the more I got concerned about my older son. Everyone dismissed the idea that he could even possibly be on the spectrum, but resource after resource listed so many of his behaviors, that I found it hard to ignore. Eventually I had him tested, and the psychologist answered with a very definitive, ” Oh yes, he is autistic.” How did the warning signs of autism seem so normal to me and everyone else?
Let’s see if you think these things are typical…
1) Lining things up
Many young children line things up as part of their normal development, so it often gets overlooked. Lining up objects is a precursor to sorting, which is a skill that all toddlers must develop. They line up their toys, then they realize that some of them look similar, and they begin to line them up in an order that puts the similar objects together. Boom! They have just learned to sort.
Most toddlers go through a stage where they line things up regularly, and it is simply a way of showing that they are excited about their new skill. Since this is normal in many cases, here are some things to consider when deciding if your child’s behavior is typical or not:
How often, and for how long, does your child line up objects?
- If this goes on for hours throughout the day, or if your child doesn’t seem to exit this lining up stage after several months, you may want to speak with your pediatrician.
Does he or she place them in a certain order each time?
- If your child has a certain “routine” for lining up objects, it may be cause for concern.
If you join your child in this line up game, does he or she tell you where to place the objects?
- If your child tells you where to place each object when you line things up with them, this probably means that each object has its own special place, in your child’s mind, and that could be a warning sign.
Does your child get frustrated over the placement of the objects?
- Getting frustrated over the placement of the objects typically means that your child has a certain vision for the way things should go, and this is a stretch from typical behavior.
Does your child ever play with the objects, or just line them up?
- Typically developing children will likely play with the objects as some point. They may line up the pieces of a chunk puzzle, but then put the puzzle together. They may line up vehicles or dolls, but then engage in pretend play with them. They may line up cups, but then offer you a drink. My 3 year old would line up all of his vehicles, but wouldn’t play with them beyond that.
2) Emotional Sensitivity
My older son has always been extremely sensitive. He gets his feelings hurt more easily than most, and he is hyper-tuned to conversations that should be far above his cognitive level. He is what people refer to as an “old soul.”
Even though he was only 14 months old when my second son was born, he was very caring and loving towards his new brother. J was constantly in tune with his baby’s needs. He would quickly pick up a pacifier or a bottle and put it in the baby’s mouth, or rub his head. (Of course my mama heart would melt every time!)
See, there is an unfortunate misconception about autistic children being unemotional. The reality is that many children all across the spectrum are very emotional – even more so than typical children – they just don’t express it the way that we expect. Some do, like my 3 year old at times, but others express their emotions in unexpected ways, and we miss it. So if your child is overly emotional, don’t blow that off and think that they can’t be autistic because they can show emotions.
3) Control
This one went completely under the radar. Whenever I would play with my older son (which mainly consisted of making elaborate “parking lots”), he would tell me exactly where and how to line up the vehicles. Sometimes he would get adventurous and drive his cars along the lines of a rug, or in the folds of a blanket. He would tell me which car to drive, and which ridge to follow. If I would pick a different car, he would get upset and insist that I drive the one he suggested. Otherwise, he would scold me for playing the game “wrong,” and throw a tantrum.
Don’t get me wrong – all toddlers want to control things to a certain degree! That’s part of what they call it the “terrible two’s,” because your child is fighting for control at that stage. But there is a normal amount of control, and there is a not-so-normal amount; use your discernment to determine where your child falls along this line.
Looking back, I kick myself for not being concerned about this behavior. But at the same time, I excuse myself because I honestly just figured it was part of his personality. “Sweet! He’s going to be a go-getter,” I would think. But the truth is that children on the spectrum often seek out control – especially if they are higher functioning. This gives them a sense of familiarity and security.
While it can mean other things as well, if your child is extremely controlling, it may be a warning sign of autism. Speak with your child’s healthcare provider if you are concerned that their behavior has crossed that “normal” line.
4) Sensory Issues
Many people recognize that sensory issues are part of the autism spectrum. But sometimes parents are told their child has sensory processing disorder (SPD), and they automatically rule out autism because they now have a diagnosis.
This was the case with my older son. He clearly had SPD, and began an early intervention program through the state when he was 2 years old. Once I had the “answer” to some of his more obvious behaviors, such as eating and sleeping issues, I thought the search was over for him. So I never would have looked further if it were not for all of the research I was doing for my younger son.
I hear from other parents on a regular basis who have done the same thing: they stopped looking once they got a sensory related diagnosis. Many of the concerned moms in my SPD groups end up being told that their child may have autism, and it confuses them, because they think they’ve already gotten the answer. But don’t stop at a sensory integration diagnosis if your child has other issues.
It is possible to have both SPD (sensory processing disorder) and autism.
My younger son also has SPD, and began early intervention when he was 12 months old. His therapists at the time told me that his sensory issues were the underlying cause of his other developmental delays…and I believed it for a while. I blew off the warning signs of autism because there was a logical explanation for each of his issues.
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The behavioral therapist told me that he likely didn’t make eye contact for so long because he was overwhelmed with too much sensory stimulation. His speech therapist said that he couldn’t speak because he couldn’t sit still long enough to learn to talk. (Guys, at 18 months, he still ONLY used a HORRENDOUS, high-pitched shriek to communicate. It. Was. Awful. He could say “mama,” but rarely did.) His occupational therapist blamed his cognitive delays on his sensory issues yet again: he was constantly overstimulated, so he couldn’t take the time to listen to conversation, and therefore he never learned what the words meant. And of course, this was the reason for his social delays, according to his behavioral therapist.
It all sounded reasonable. And it may have been true too. BUT…that doesn’t mean the diagnosis story should end there. If your child has major social and cognitive delays…even if they have SPD…please speak with their healthcare provider about these concerns. Whatever the case, go with your mom instinct!
I am so glad that I continued to push because of my concerns with my younger son. I probably would not have known that both of my boys were autistic otherwise. I wouldn’t have been able to get them the proper help, and I wouldn’t have been able to really understand them. Knowing really is a huge part of the battle, because once you know what is causing your child’s issues, you can find the right resources to help them prosper.
If any of these behaviors ring a bell with you, check out this great read on autism in toddlers.
Don’t Miss the Warning Signs of Autism
Dear mamas, please don’t let someone talk you out of further investigation. If you are concerned at all about your little one’s behaviors, ask a doctor. Do your research. Don’t miss the warning signs! Autism is such a broad disability, and there are so many ways it can present itself; so don’t be tricked into thinking that your child must fit the mold of a “textbook” autistic individual in order to be autistic.
You are your son’s or daughter’s biggest advocate. If something about their behavior doesn’t seem right, do everything you can to get them the resources they need to prosper. Connect with other parents, and get their support and advice. Cry with others in the trenches, and learn from those who have had successes. You can join my free FaceBook group to chat with other moms about autism and sensory integration disorders. Help is just a click away!
I did not know any of these warning signs. Good that you wrote about this and your experience with doctors missing these things as well.
Yes, Candy, it’s surprising how much the doctors miss too – that’s the disappointing part! Raising awareness will help get these things in the public eye more, which will hopefully cause the doctors to become better educated in turn!
I love anything and everything that brings awareness to autism❤️
Me too! You’ll find plenty of that here!
I feel so helpless, my nephew has all of these signs! I believe his mother does also! They won’t talk about it and nobody is allowed to talk about it! I’m just concerned because he is usually in his room with the TV on and he’s playing on his iPad….he’s gaining weight because he doesn’t get any exercise! I’m also concerned because he isn’t getting the help he needs!
This is true. I worked for kids with special needs.
Another subtle sign that I notice is the obsession with letters and sometimes arranging them backwards. This can sometimes make a parent proud but if a child is already doing it for a long time and it’s the only thing that they want to do, a parent should investigate.
Thanks for adding that one, Phoebe! I have also known autistic children who took pride in reciting the alphabet backwards, so apparently there’s something to it.
My 3 year old son was diagnosed with SPD just before his second birthday. I had told the doctor my concerns and she set me up with first steps. They came and evaluated him and told me it was SPD. We had a occupational therapist come to our home once a week. I still thought it was more then SPD. He was about to turn 3 and still didn’t talk in sentences and he only used about 30-40 words. He seemed to be getting worse instead of better. His temper tantrums have become horrible. I became close with our OT and I knew she also had experience with autism. I finally just told her I thought my little guy was autistic and asked her if I was crazy. She was so happy I said something to her. She agreed that he showed signs and said that it would be a good idea to have him tested. Here now lies my problem, our insurance says they don’t cover mental health and won’t cover the cost of the evaluation. The evaluation is very pricey. Does anyone have any suggestions?
Ugh!! I’m so sorry, Kendra! That’s part of the problem with getting our kids diagnosed; insurance often doesn’t even cover it. Check into your state’s Early Intervention and special education programs. Many states have an EI program that is completely free, covered by the state. Before their 3rd birthday (or whenever you get an IEP), they typically transfer from the home visits to the local school system. During this process, many schools have their own autism evaluator who can assess your child during the entry process. This would be free. So talk to your OT and find out how to get him into the local school system, and whether they have an autism specialist in the school.
I have a 4 year old and she was diagnosed a year ago, she had a lot of signs of autism to me and my family but her doctor said that she only had anxiety to separation and speech delay do to the fact that she had a few ear infections when she was one and lost her Speech , after that she had ear tubes placed on , but her speech was still bad for a couple of years so when she turn 3 I took her to the school district to get evaluated because of her speech she could get qualified for free preschool for her condition, turns out she does have autism in the high functioning and thanks to that I was able to convince her doctor to get her evaluated, and has a parent is har when you don’t know what to look for and what’s normal. Thanks for talking about this, because I know it would help many people.
It’s so good that you had her re-evaluated! Autism can go unnoticed for so many reasons, even by professionals who deal with it on a regular basis. I always tell parents to have a follow up if they aren’t seeing big changes in their child after taking whatever advice the doctors have offered after brushing off their symptoms and attributing them to some other cause. It’s always best to try again!
Wonderful article, and way to go, Mama! Advocating for our special needs children sometimes feels like an uphill battle. Sometimes for me it feels impossible, but one foot in front of the other mostly does the trick. I still get SO upset thinking about all the medical professionals, including my son’s pediatrician, who seem terrified of the big bad A word! Get a grip people! They say its over-diagnosed. 10 years into this Autism journey I am coming to realize it is grossly under-diagnosed, and alarmingly misunderstood still in the majority of the medical community!
SPD and Autism go together like peas and carrots. The genetics are closely tied.. among many other things. You probably have enough to research for now, but eventually maybe check out comorbities to keep and eye out, and even HFA/Aspergers in adults, females. The ONLY reason I say that, is because it took me 10 years after the struggle to find help for my son – to start falling apart mentally and physically, (starting slowly after the birth of my daughter who is now 6) and the process gaining speed exponentially over the past 2 years or so. Losing faith in my doctors, I started researching my little hiney off and realized I somehow missed 33 years of clues that I am autistic myself. High functioning, being that my IQ is high and I can mask so well I have hidden it from everyone including myself lol. Also, I have EDS, which happens alongside autism fairly often, so my body is just self destructing. Getng a diagnosis takes forever, because again.. doctors. SOOOO, if I could save even one person a few years, this ramblerant would have been worth it. Best wishes and love and light and yada yada to all of you lovelies lol (;
Thank you for sharing your journey, Nicole! I could have written much of that myself. All of my research for my boys several years ago made me start realizing I needed to be evaluated too…especially once all of their therapists started telling me it was obvious to them that I was on the spectrum too! 😳 Conversations started, and I found out my parents didn’t have the money to have my brother and I evaluated as children, and his doctors had even said that he was likely autistic. As adults, we have both discovered our places on the spectrum, thanks to my boys. It definitely has a huge genetic component, and sometimes can be more severe as it carries over from one generation to the next. Hopefully more doctors will begin getting the proper training so they can recognize the signs earlier!